Our role is to:
- help drive the agenda with other stakeholders to improve patient outcomes
- support the areas of research, diagnosis, treatment, and prevention of rare neuromuscular diseases in Australia.
- form partnerships by working with established organisations and research institutes operating in Melbourne and Australia
- funding innovative research, best practice in diagnosis and driving improved and equitable access to services.
We are committed to working closely with the respective medical research institutions, trusts and foundations and stakeholders who of course, share the same vision and mission as we do; we want to provide help and solutions for a better life and we will endeavour to do this by being committed to work within the rare neuromuscular diseases.