The Fred Liuzzi Foundation is a not-for-profit charity organisation that works with health professionals, patients, carers and survivors to reduce the impact of Rare Neuromuscular Disease on the Australian community.
TFLF was established in 2011 by Fred’s children, Alfonso, Margherita, Elena and Renato; the foundation will support research, advocacy and public health into Rare Neuromuscular Disease; which affected Fred in the latter part years of his life. The Fred Liuzzi Foundation, established in his memory will honour Fred’s legacy.
To explore the void in the world of Rare Neuromuscular Disease through research, education, diagnosis and experience. We ensure to work closely with specialists, researchers and educators on this journey.
A world free from disability and suffering caused by Rare Neuromuscular Disease.
The Fred Liuzzi Foundation is a charitable organisation with DGR status.
We are committed to working closely with the respective medical research institutions, trusts and foundations and stakeholders who of course, share the same vision and mission as we do, we want to provide help and solutions for a better life and we will endeavour to do this by being committed to work within the rare neuromuscular diseases.
To improve diagnostics and management for patients afflicted by Rare Neuromuscular Diseases in Australia over the next 10 years.
Compassion, connection, excellence, integrity, respect, innovation, commitment.
We will achieve this by:
Educating the public and professional bodies about the risk factors and signs of Rare Neuromuscular Diseases
Investing in Research
Encouraging the development of comprehensive and coordinated services for all Rare Neuromuscular Disease survivors and their families.