Bobby Zagame

Founding Board Member

" To find a cure for the Rare Neuromuscular Disease that took my dear friend and mentor Fred Liuzzi. It is an honour to be a board member for Fred's legacy and his family."

Paul O'Hern

Founding Board Member

"My hope is that the foundation can contribute to raising the awareness of neuromuscular diseases, improving their diagnosis and ultimately assist in finding a cure to the diseases of the type that sadly afflicted Fred in the last year of his life."